We made it back home! The last day in Palo Alto was hectic - packing, feeding Sophia, packing, feeding Sophia, diaper change, more packing...but we made it to the airport and Sophia was an amazing little traveler. We were very grateful to be picked up from the airport by friends and once home settled in for the night.
Sophia is doing well overall but now we are dealing with some feeding issues. She has started this weird thing of gulping air - she does this regardless of whether she is trying to eat or just laying there. We are not sure if this has something to do with the paralyzed vocal cord. We do know that she now has a major problem with bubbles in her tummy and is highly uncomfortable. It also means that she has been spitting up her feeds even when given via the NG tube. On Monday we have our first set of appointments here with the cardiologist and pediatrician and hopefully they can help or get us a referral to an ENT doctor (ears, nose, throat) so we can understand what is happening with her suck - swallow reflex.
Saturday, April 21
first days home
Subscribe to:
Post Comments (Atom)
5 comments:
Welcome home!! We hope that her stomach is feeling better soon.
Izzy sees and ENT at children's. Dr Perkins, he might only do vascular I'm not sure but we love him and his fellows have been great as well.
Welcome home, it is really wonderful to know that you are back already! Hope Sophia's feeding issues settle down soon. I agree with Wyndi that the ENT department at Children's is very good, as well as their feeding team. Take care. - Josephine
So glad you guys are back at home! I know you guys are hyper-sensitive to everything she is doing right now, but just remember that all babies spit up, get gas, get uncomfortable, etc. and soon you will begin to find her rhythms and will know when it's "normal" and when it's something to be worried about. It's hard not to feel helpless when they are so tiny. And also remember that it truly does get easier - not easy, just easier. Each day you will become more and more confident but then something will happen (a fever, a rash, teething) and you will suddenly feel back at square one but you have a terrific community of support, some of us who are stumbling through parenthood ourselves, and we are always here for a quick question, to share an amusing anecdote or to empathize with a cathartic cry. Also, if I can offer a piece of unsolicited advice to you Kenia, in these early days I highly recommend just getting out for a short walk by yourself. Breathe in some fresh air, be alone with your thoughts and begin to appreciate how your body feels not being pregnant anymore. It really helps you to recharge.
Thank you so much for keeping up this blog. It has been really wonderful to be able to follow your progress from so far away.
tons of love,
Clare
we hope her apts went well. she is beautiful!
Sophia,
happy first of May - spring is out there and my parents and I all hope that you will enjoy it with your parents.
All the best from Fairbanks
your little friend Tuuli
Post a Comment