Right now we are staying with Kenia's sister which is really great but it is not very close to the hospital. We are waiting to get a place closer, hopefully at the Ronald McDonald House which is a few blocks from the hospital. We had our first two days of appointments but before we describe the appointments, we have to complain about bay area traffic - it's horrible. It took us over 2 hours to get to the hospital...Kenia better not go into labor during rush hour. Anyways, here's how our first two days went:
Day 1: The Lucille Packard Children's Hospital (part of Stanford Medical Ctr) is very nice. The ultrasound told us what we already knew - she is very small - between 4-5 lbs. The accuracy of baby sizing at this point is +/- 12 ounces. Her heart rate and movement was good. We then met the high-risk OB (Dr. Jim Smith) who was very personable, took a lot of time with us and is a very good OB. The current plan is to wait till next week (we are currently at 36.5 weeks next week will make 37 weeks, technically full term, the baby is due April 2nd). They will likely do amniocentesis next week to check if the baby's lungs are mature. If they are, then an induction date will be set probably for sometime during week 38 - unless she decides to come on her own before then. They fully expect that the baby will go through labor just fine so it looks like we won't need a c-section. We then started driving back home...another 2 hours. At this point we had dinner and passed out.
Day 2: Wake up, drive two hours. Our only appointment is an echocardiogram. First we started with a great technician. Then Dr. Silverman came in - he is a pediatric cardiologist and specializes in fetal echocardiography. He was great! He is an excellent doctor and is gregarious with a good sense of humor. They were able to get the best images of her heart that we have seen so far! This is really amazing especially considering that imaging her is more difficult now because her ribs are more ossified and cast shadows when trying to view the heart. Needless to say we were very impressed. The echo didn't show anything new and confirmed what has been our understanding of her condition so far - double outlet right ventricle, large VSD and a coartation. He also told us they just did surgery yesterday on another baby with a similar condition who weighed only 2.4 lbs! This baby is doing just fine so far. Amazing.
Today we have the day off and are trying to catch up on things and rest. Tomorrow we go back for another full day. Overall, after our initial appointments, seeing everything and meeting the doctors we are very satisfied and happy that we traveled down here.
Wednesday, March 7
first appointments
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5 comments:
Hallo Christopher,
ach Mensch, ich denke so an euch und als ich die erste mail las, war ich so verwirrt, dass ich dachte, eure Tochter sei schon auf der Welt - aber jetzt lese ich ja- zum Glück! dass sie noch im Bauch ist und munter weiter wächst. Gottseidank, dass ihr schon bis zu dieser Woche gekommen seid. Ich schicke uch wirklich ganz viele Gedanken jeden Tag, gestern beim Joggen war ich an der Wiese bei Hohenentringen, wo wir früher manchmal Schwert gekämpft haben und ich wünsche mir und vor allem euch ganz fest, dass eines fernen Tages all diese Strapazen lange vorbei sind und die Kleine mit dir über diese Wiese spaziert bei einem Besuch hier bei uns und du ihr zeigst, wie du hier früher ein Ritter warst!
Ganz liebe Grüsse und seid alle fest mit warmen Gedanken umarmt,
Deine schusslige Gabriele
Yah Kenia! No C-section! I am so pleased for you.
I am glad you are feeling comfortable down there - except for the driving it all sounds as if things are going well.
Its also reassuring that they have operated on such a small baby. It must make you feel a lot better about Baby Krembs being on the small side. I hope s/he surprises you by being on the larger end of their estimates.
It sounds like you picked the perfect hospital and doctors (it is so important to like and trust your medical teams)!! I am so happy to hear that things have been going well down there...except for the traffic. Please let us know if there is anything you need and we will get right on it.
Cheers,
Dian
we hope that your test went well, we are happy that you are comfortable with the doctors there:) I hope that you can get a place closer to the hospital soon so you can avoid all the traffic. Does the children's hospital have sleeper rooms for parents of ICU children? we will be keeping you in our thought and prayers:)
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