Sunday, April 15

almost home...

The last couple of days have been quite eventful. Besides finding out that the post-operative echocardiogram showed a successful repair, we were also moved upstairs to the I/ICU on Friday afternoon. This is different atmosphere than the CV/ICU. It is a lot quieter and now we have a chance to fully participate in Sophia's care and do all the wonderful things parents do - feeding, lots of cuddling and of course diaper changing.
On Friday we also found out that Sophia's left vocal chord is not moving. The nerves controlling our vocal cords run near the heart and this is a very common complication when there has been extensive surgery on the aortic arch. Dr. Hanley was not surprised about this because he had to put some tension on the nerve during surgery however he says that the nerve was not severed. The interesting thing about these nerves is that even if they are severed they can grow back. The doctors expect Sophia's to start working again in 1-3 months. Right now her right vocal cord is compensating which is why she can still swallow and vocalize/cry and her voice gets stronger everyday - apparently we can get by with only one vocal cord.
The big news is that the doctors are planning to discharge us from the hospital on Tuesday! We are both excited and a little scared. Tomorrow they will remove the last of the lines on Sophia and run the last couple tests. They will also teach us how to handle her feeding - she will still have an NG tube for a while. We are planning to spend a couple days down here and then head back home. We can't believe that we are going to be home soon and that Sophia's surgery was just two weeks ago! We are really looking forward to having our little family home.

5 comments:

Anonymous said...

Wow, almost on your way home - congratulations! We remember that moment well (only a few months ago) when we put our little one in the car seat for the first time ever ... and then we were on our own, which was indeed a little scary even after a regular birth and no operation. We wish you luck, confidence, good recovery and close friends with small kids - that really helps us a lot!
Hugs, BoRoTu

Wyndi said...

how wonderful! she is a super star!!!

Anonymous said...

God, guys, congratulations on all of it. What a tough several months and what an incredibly special reward. Thank you for all the updates, I'm so glad you kept us all informed. Love to all three of you, Susan

Anonymous said...

Holy Mackeral!! You might be home soon! That is terrific. Congratulations! We can't wait till Sophia can visit the lab and we can meet her in person.

Cheers...dian

Unknown said...

Hi,
I am so relieved to read all
the good news.
I clearly felt a stress relief
when reading that you are going home.
I can only imagine how it feels for
you after such an adventure.
I am impressed by your courage
throug the adversity.
Can't wait to see your first
pictures with a stroller.

A super soft caring hug for Sophia,
a tender hug for Kenia, and a big manly
hug for Christopher.
Bisous.
Frenchy J.